According to the Sjogren's Syndrome Foundation, April is Sjogren's Syndrome Awareness Month. View letter from SSF CEO Steven Taylor explaining this year's campaign.
With that in mind, I'm hoping to round up a list of Sjogren's blogs, including Reasonably Well, Sjogren's and Me, the Sjo Girls at Cafe Chronique, and Young & With Sjogren's.
Know of other Sjogren's blogs? Leave a comment, please!
Hello,
I haven't had time to fully explore your blog, but I love what I've seen so far. I would love to collaborate on a future project that's taking shape in my mind. I have been dealing with a chronic medical condition and feel like a 'professional patient'. I was diagnosed with Acute Lymphoblastic Leukemia in 2004, remission for a while, relapsed and did stem cell transplant in 2008, dealing with chronic graft versus host issues currently. I think there are so many newly diagnosed patients who can benefit from the experience people like us have gained. Anyway, I just wanted to make contact and introduce myself. Do you use facebook? I do. I also maintain a blog (not up to your standard) via caringbridge.com. Hope to hear from you.
Posted by: Michelle Duesterhaus Tang | March 29, 2009 at 09:47 PM
I received my friends helping friends/Sjogren's Awareness campaign notice and letters in the mail today. Steven Taylor's message (linked in original post above) seems to have an incorrect contact phone. If you have questions about the campaign, or need additional letters, contact Elyse Jordan at 1-800-475-5473, ext. 217.
Posted by: Valerie Riedel | March 31, 2009 at 11:17 AM